Baby Steps Toward Foster Care

I’m proud of ourselves for taking several steps to getting us closer to our goal of being licensed for foster care. This weekend we took care of some small items that we kept meaning to get done, but never seemed to get around to doing. I feel like we are on a roll, hopefully it wont stop until everything is finally finished.

One thing we have to have on file to get licensed is background checks on babysitters. This is one of the first items we need turned in because it takes some time to run the checks and get them approved. Obviously, we’ve never had the need for a babysitter before so we used family members for now since it seemed weird to find and meet a babysitter and ask them for their social security number and all the other information we need to turn in… when we don’t even have someone to babysit yet. Now this is done and ready to be turned in!

We did much furniture moving and setting up in our spare rooms. We have all the main pieces, except for the crib, where we want them. The crib is scheduled for delivery some time in the next couple of days! We finally decided to give up on trying to find a used one that met all the current regulations. Since drop-side cribs were banned so recently, no one is getting rid of the kind we are allowed to have yet. Instead we invested in a brand new one. I can’t wait to unpack and set up all the things we have so far. No pictures until everything is finished!

After much debate about the best way to lock up all of our medications we finally decided to go the cheapest route possible. We probably should have decided on that a while ago, but we were also wanting to make sure it was still convenient for Jesse to be able to do his daily treatments. With Jesse having cystic fibrosis, locking up our meds is a larger project than it might be for the average person. We turned an under-the-stairs closet into a place to store all of his meds, any of our cleaning products, and other hazardous items that are required to be locked away. We were considering getting a fancy lock that we could open by punching in a number code, but those where so expensive and would require extra drilling in the door. We got one that is identical to the ones we have throughout the house for only $13. It looks the same as before only with the lock mechanism.

Door lockJesse installing lockFinished door

We also came up with a cheap solution for Jesse’s refrigerated medicines. We had been planning on buying a mini fridge with a lock, but were holding off because of the cost of them. Then we realized that if we organized things better, they could probably fit into a much smaller place than we currently had them. We bought a small cash box with a lock to neatly store all of his refrigerated medicines. Everything fits into neat compartments with room to store extra items under the cash tray. It only cost us $16. It’s not something you would expect to find in someone’s fridge, but I think it will serve the purpose.

Lock boxLock box keysTop medsBottom medsBox in fridge

Lastly, we took a quick trip to my favorite store… Goodwill. We purchased a bunch of fun books. We didn’t yet have any books with the hard, cardboard pages. We came home with 18 books for about $20. They are all in great condition and I just may have read them to myself while I was putting them away.

Books

Even with the progress we made this weekend, we still have much to do. It’s hard not to get discouraged, but we are determined to make it happen!

Traveling with Cystic Fibrosis

Remembering everything you need to bring when traveling can be challenging for anyone. As you can imagine, it gets even more difficult when you have an arsenal of Cystic Fibrosis medications and equipment to bring along. For years Jesse chose to ignore CF and skip most (or all) treatments when traveling so we’re just now getting the hang of how to pack everything he needs. After a couple of successful trips this year, I thought I’d share some tips we’ve learned for our CF friends who are traveling for Christmas…

  • We try to pack all medications and related supplies in one suitcase. It just makes sense that this is the best way to make sure we have everything and it makes it easier to unpack when we get to our destination. When we travel by air we keep this as our carry-on bag so that there is no risk of it not arriving when we do. When we travel by car we want to make sure that none of the meds get left in the car if we don’t bring everything into the hotel room, and risk them overheating.

Meds bag

  • Also when traveling by air… we like to get a letter from clinic stating that all of the medications, supplies, and equipment are necessary for Jesse to travel with. The meds bag usually gets flagged and checked out pretty carefully (understandable) and we like to make sure we will get through with the needles and all the liquid vials. We also like to make sure we will be allowed to keep the Vest machine and CPAP machine with us as extra carry-ons since they are too expensive to replace if they were to get lost somehow.
  • Since the last two trips were road trips, I just brought the entire container of weekly vitamins. We were gone for more than two weeks both times and it was much easier to fill the pills container like usual instead of trying to count them all out ahead of time. And of course… it never hurts to bring extra Zenpep!

Vitamin container

  • We like to have a separate cooler, other than our food cooler, for the refrigerated meds so that it isn’t getting opened and closed all day. When get to our hotel I empty the meds into the fridge and refreeze the ice packs for the next day.

Cold meds

  • Lastly, Jesse has gotten used to finding a treatment chair to unload all of his stuff when we get where we’re going. The most important part is making sure the treatments actually get done. It’s hard when you’re busy being on vacation, but he feels so much better during the activities of the day when he has done them.

Treatment chair

That’s what works for us. Anyone else have some helpful tips to share?

Christmas Ornament Exchange

Several moths ago I joined a CF wives group on Facebook. It’s been a great way to get to know so many fabulous women who understand the challenges that sometimes come with being married to a CFer.  The Facebook group has even lead me to meet up with a few of the wives who live in Tampa… we’re all going out again for dessert tomorrow night!

Even though I haven’t met most of the wives in person, I feel like I know know them. I find myself wanting to check up on them to see how they and their hubbies are doing. So, I was excited when one of the girls came up with the idea to do an ornament exchange. Everyone who wanted to participate sent her their address and she assigned us someone to send an ornament to. I shopped at the craft fair to send an ornament off to Jennifer in Connecticut!

When I received a package a package from Amy in Tennessee, I knew exactly what it was and couldn’t wait to open it. Look how cute the package looked too!

Ornament package

She said that she had to break the rules just a little and buy me two ornaments because she thought of me right away when she saw them. I think she picked perfectly… I love them both.

My ornaments

They are on the tree and add to my collection nicely. Aren’t they cute?

Candy cane ornamentFaith ornament

Thanks again Amy!