Humpty Dumpty

Humpty DumptyThat’s exactly how I feel.  I’ve gotten myself into a huge mess with all of this allergy crap.  I was okay with all the life changes at first, but now it’s just getting old.  I wish I could just go back to my favorite, easy meals that we were used to having.

I don’t think I ever would have tried this elimination diet if I knew that I would never be able to go back.  Now that I have been avoiding all of these foods for several months now, I find that I am getting more and more sensitive when I do have them.  I mentioned that to the doctor, and she that can happen… I wish she told me that before.  I used to bring a sandwich to work for lunch almost every day.  Now even the smallest amount of anything with wheat and I feel awful.

The new plan is to (very) slowly start adding the foods back into my diet.  I don’t need to eat these things everyday, but I would really like to be able to tolerate going out to eat or having a piece of cake at a party.  I’ve gotten a lot of cooking practice over the last couple of months.  We’ve tried new foods that I would actually want to keep in my diet.  But it sure would be nice to fall back on our favorite mac ‘n cheese on busy, tired nights like before.

So many social things are centered around food, and I want to be able to go out more or eat with friends like before.  Plus we have a few travel plans coming up later this year.  There is no way that I can eat like this while traveling.  I know it will take some time to get my body readjusted, but I just have to get put back together!

Failed

Today I went for my weekly allergy shot.  I had quiet a hard time dealing with my reactions from last week’s shot.  I had swollen lips, extreme dizziness and nausea, and shortness of breath.  After I explained my symptoms to the doctor, she suggested that I should probably discontinue shots for at least a couple of months.

My reactions were making me worse than when I was just dealing with the allergies.  She thinks that part of the problem is that they were trying to treat me for too many (48) things at once.  She said that after a couple months I might want to come back and try working on a few allergens at a time.  She thought we would possibly choose dust, one type of tree, one type of weed, and so on.  That way if I can control some of my allergies, my overall health might get better.

FailThere isn’t really anything else they can do for me right now.  They had already weakened my vials, and she said the dose that I am getting right now is ridiculously small.  But I think my body is just not handling such a wide variety of allergens all at once.

I feel pretty disappointed at this result.  We spent a lot of money doing all the testing and going to treatment for the last three months.  Not to mention that the caveman diet, and avoiding foods, has made me even more sensitive to the foods that I was allergic to in the beginning.  So, I feel pretty stuck and not sure where to go from here.  I know it’s not the end of the world, but I guess I never really was a very good patient to begin with.

The Silver Lining

Last week Jesse had his annual CF clinic visit. For the most part, he got a great health report! His PFTs were down a couple points, but the doctors said that a small fluctuation like that was nothing to worry about. Jesse was also very encouraged to hear that his lungs sounded perfectly clear. He said it has been years since he hasn’t had “snap, crackle, and pop” when he takes a deep breath.

But the part that I found most interesting was the results of his blood work. One aspect of CF is that nutrients from food are not well absorbed by the body. This is part of the reason many CFers, like Jesse, struggle with weight gain. However, it seems that our recent switch to the caveman diet had an extremely positive outcome on the amounts of essential vitamins Jesse is absorbing. Not only are we both feeling so much better eating this way, but I think this is the first time in a long time that his blood levels for almost everything was in the normal range. How awesome is that? I guess eating healthy food does make you healthy. It’s nice to have proof that this is helping him to, since it SO much work!

Now we are half way through yet another busy weekend. The days fly by so quickly. Jesse has been super busy working so many hours on all the websites he needs to have done before Thanksgiving. But we’ve had a good weekend so far. We had my Mom over for dinner last night. We talked about food planning for our holiday meals and about how neither of us is allowed to eat these foods anymore. She has just found out that foods and other products high in nickel is what is giving her so many skin irritation problems. We went back and forth over whose food allergies were worse. In the end, we mostly decided not to change anything on our holiday menu and pay the consequences later. All those recipes are too yummy to miss out on! Jesse fell asleep on the couch, I guess he is tired of talking about allergies… don’t know why?

We did get a little break today though, between errands. We stopped by Village Fest for a while. It was just a little community event with food, music, and craft booths. We got to hear the church worship band play, which my brother is a part of.The Oakwood BandWatching the band

Then on the way out Jesse got a caricature done of himself, which turned out great. I had one done years ago, so no we both have one. Now we just need to get frames.CaricatureOur caricatures