Jamiebug Paracord Bracelets

May is Cystic Fibrosis Awareness Month!

I wanted to introduce you to my friend Jamie. Jamie has CF and received her lung transplant over five years ago. We came across her blog, Jamiebug, some time ago and have been following her ever since.

Jamie

I find this woman beyond inspirational! She is amazingly positive despite all that she has been through in her life. I love reading what she is up to and how much life her new lungs have given her. What I find just as inspirational is how her husband stuck by her and fought for her when she got so sick. What a testimony to their love and marriage vows!

I would encourage you to watch the video of her story if you’d like. Let me warn you… it is pretty hard to watch. Just make sure you are prepared for it, it might bring a few tears.

Jamie makes these fun and fabulous paracord bracelets to help offset the costs of her medical bills. She was nice enough to send me one, and I love it! Of course I picked purple for CF awareness, but she makes them in many different colors and patterns. I think her organ donation bracelet is pretty awesome too. Since they are all handmade by her, she can make just about any color combination you would desire. Check out some of her creations on her donation page and find out which colors you’d like to have.

Bracelet

I feel lucky to have “met” Jamie and to consider her a friend. Thanks for considering helping her out by buying one of her bracelets.

Those People

It would seem as though we have officially become “those people!” The ones with the loud/screaming kid walking around the store while everyone is trying to shop quietly. Yesterday I joined the club.

I took A to Walmart with me to buy some new outfits for him and a few other things we needed to pick up. I thought I had picked the best time of the day for an outing. It was right after lunch with plenty of time before nap time. He started out happy and talkative, saying hi to everyone we passed… like he normally does.

I’m not sure what happened, but all of a sudden he was in tears for no reason. Maybe he saw something he wanted that I didn’t see? After that meltdown was over we continued on nicely again for some time. He would hold things that I picked up that we needed to buy and drop them in the cart when he was finished with them. Then we came to a bucket of sand toys we were buying for him… only it was to big for him to hold while in the cart. This started meltdown number two. He did so great at the grocery store the other day, but maybe Walmart items are just too exciting to shop for when he’s with me.

For the most part no one seemed to pay much attention to us… until we got to the checkout. The customer in front of me turned around and kindly let me know that A seemed unhappy and might be tired. REALLY?? Thanks so much, I hadn’t noticed that! She was an older, grandmotherly type lady. I’m sure she meant well, but I’m not sure what made her think she need to let me know her thoughts.

The whole shopping trip was only an hour, maybe. But with how much effort it takes it sure felt like a lot longer. Anyone have any shopping tips to share, or should I just make trips like that when I can go solo?

Bowers Family Fundraising

May is Cystic Fibrosis Awareness Month! Would you consider making a donation to someone who is raising money for a cure?

Do you know the Bowers family? We had the joy of getting to meet them in person when they came to Florida last year. Kaleb Bowers is 11 years old and has Cystic Fibrosis. We have really enjoyed being able to keep in touch with them over the last couple of years. He and Jesse have become CF buddies.

Bowers family

This family is amazing in how much money they are able to raise and donate to CF research. They always have fundraisers going on and we truly appreciate all the time and energy they spend working towards finding a cure for CF. We are so very proud to be a part of Team Kaleb!

Team Kaleb

What really touched my heart was how hard Kaleb’s little sister, Hannah, is also working toward helping to find a cure for CF. She has raised thousands of dollars through her Coins for a Cure! She even made it on to her local news… they did a story about her cause. What an amazing girl she is!!

If you’d like to be a part of Team Kaleb, check out their donation page and help them meet their fundraising goals! Learn more about the Bowers family by following their blog, A Little Hope from Oklahoma.